fully aware

it's like pulling teeth

getting information about my only daughter from these nurses

and her mom hasn't updated me since i last saw her

four days ago

but

her nurse told me this morning that she's sittin' up in a chair

(outta that bed, that's great!!)

and that this morning she's been 'fully aware'

i like that 'cuz she's been so zoned for so long


so her nurse said she's doing fine

that's all we can go with

that's good enough for me


i told the nurse to tell acacia that her dad called

i hope that's enough for her


THE NEXT STEP

in a long process of baby steps

-which she's taken so many so far

the next step is to take that breathing tube out of her throat

and have her breathing on her own

that would be a very big step

-say your prayers

feeding time!

it's not a feed bag

but they have taken out the feeding tube from her nose

and have put a 'feeding unit' next to her bed

that sounds great 'cuz she's getting too skinny


they also did a CT scan today

waiting for results

her nurse said she's in much better spirits

and get this

she texted my this morning

it was a little weird

said 'hey, back in la'

but i was thrilled

texted her back but no reply

but, god willing we can start texting soon

that's all i know

phone updates

i called her nurse this morning

she said she's doing good

been off her breathing machine for two hours

and doing OK

going to have a four hour dialysis treatment today


yes i'm back here in long beach


her and her mom thought that she's doing well enough

for me to go home


it was hard for me to leave

but the fact that she has left so many of her machines behind

and that she's doing so much better

and that the nurses say she's doing fantastic

and that she wants to deal with this with her mom

and that her mom is an unbelievable mom and caregiver


i left


i'll get updates all the time

and i'll post new updates when things change


thank you again so much for your concern, love and prayers


may almighty god bless us all

the story remains the same

as far as i can tell

she's doing pretty good

sitting up in her bed

all cleaned-up and as beautiful as ever

blood pressure still moving around

but

maybe the dialysis will correct that

still off and on her breathing tube

but for what this little girl has gone thru

she's doing so good


the nurses have said in the last week

she's doing good

to

she's doing great

to

she's doing fantastic

i'll take


thank you god

and thanks to everyone for all of your prayers

love and support

this is what makes people get better

two purple popsicles

tonight when i got there

things were looking up

she had just finished eating two popsicles


and over in the corner was her dialysis machine


it was turned OFF


she's doing good

still so weak but seems that for right now

it's all systems go

good news from bed #3

her nurse told me that her blood pressure is stabilized

and her heart rate is good or at least understandable

so the doctors have decided to take her OFF the 24 hour dialysis

and just go to every other day for 4 hours at a time, great!


another day and another machine gone


she still is so frail and weak

while i was there a therapist came in and moved her

arms and legs around to keep 'em strong and flexible

she responded well, the therapist seemed happy


she's resting today, or trying to

they come in every few minutes to do something to her

-she's in good hands in more ways than we can know


this was posted by Anonymous (you can post too :)


I would have despiared unless I had believed that I would

see the goodness of the Lord in the land of the living

Wait for the Lord, Be strong and let your heart take courage

Yes, wait for the Lord

Hal and Lulu

sick people at the hospital shouldn't be the nurses

yes, it seems that maybe her nurse gave her something

she's got a fever and her white blood count is high

they don't know what it is

but they're treating her with some antibiotics


her blood pressure is still too high and her heart rate

is between 99 and 109. too high


she went to sleep while i was there

and she didn't tell me to leave

but this morning she's too sick to say or do anyhing


her mom came in to take care of her

she's really upset and has had acacia's main doctor in boston

start to get ON these doctors and nurses here in pittsburgh


she's on continuous dialysis and i think that's what's

happening with her blood pressure and heart rate

ya know, dialysis beats the heck outta you


let's just hope that her infection is nothing (or treated)

and that her kidneys heal and start working right again