a li'l better

nothing's really different

i just called and everything's the same

other than her stomach feels a li'l better

and she's 'not so sedated' -yet comfortable


they still don't know what's going on with her

the nurse said they are just waiting to see if

the new lungs kick-in and start working by themselves


that sounds to me like it's time for more prayers

'resting comfortably'

i think when they don't wanna talk to me

or they don't know what's going on

they tell me that she's 'resting comfortably'

this nurse this morning had no idea how to answer

my questions about acacia

she just keep saying 'i don't know'

and 'she's resting comfortably'

what they've done, (i'm fearing)

is just knock her out again

last night she was in distress and 'comfortable'

they don't know why she's having so many different problems


just

'her numbers are normal and she's resting comfortably'


i guess i should be thankful for that

i keep reminding myself -she's out of my hands

-she's in god almighty's hands

i'm really thankful for that


Anonymous has left a new comment on your post

I will lift up my eyes to the mountains; from whence shall my help come?
My help comes from the Lord who made heaven and earth.
He will not allow [her] foot to slip;
He who keeps [her] will not slumber.
Behold, He who keeps [Acacia] will neither slumber or sleep.

rough time

she's anxious and her blood pressure is up

she's sick to her stomach and weak

she's not resting and uncomfortable

the nurse couldn't tell me too much more

because she had to go take care of her

she's having a very rough time of it

and they still don't know what exactly is happening


please keep her in your prayers

ask god to go a little easier on her

'headed in the right direction'

that's how her nurse described her this morning

off sedation, gonna have her sit up in her chair

lowered her oxygen machine to '30'

he did say however that now there's some problem

with her digestive tract, but he wasn't concerned

-'we'll give her something to take care of that'

he said she's headed in the right direction


editor's note:

this is my 50th posting and after this much contact with these various nurses
i think i've come to the conclusion that you really never know what's happening

they are not gonna alarm me or admit that they've done anything wrong
or that their patient is in any pain or distress or danger

but me not being there and all i have to report is what they report to me

-that's how we get back to the question of 'how do we cope?'

we cope with hope

these things are obviously out of our hands
so we have to rely on somebody else to handle things
she's in good hands
and me, for one, i have hope

slight improvement

is better than none

they hope to take the breathing tube

out of her mouth and throat

and replace the 'trach' tube

i like that, i hate that tube in her mouth

her numbers are still fine and she's still sedated

'slightly'

she's 'comfortable' and 'holding her own'


the biopsy showed "NO REJECTION" -that's great!

there is still air around her heart

but it's not effecting her heart function

and it 'may' have started to dissipate


overall: 'slight improvement'

in a long long road to recovery

no results / nothing new

she had her CAT scan

there is still no results from

her surgery yesterday and her scan today

she's still heavily sedated and resting

her nurse told me she's doing ok

they are taking a lot of fluids from her

-she's on continuous dialysis -so that's good

and they were able to lower her settings on

her breathing machine -so that's good

and her 'numbers' are good -so that's good

also the air around her heart has not increased

so they 'think' that's good...


a lot of guessing and waiting and this is driving me

nuts!

good news ...and bad

the good news is that they've taken that

big, double-wide vent tube out of her mouth

and replaced it with a smaller one

seems the issue of a 'collaped lung' has passed

she's oxygenating well and her numbers are good


the bad news is that her x-ray this morning revealed

air in the sack around her heart

it's not causing any trouble yet,

but they gotta fix it, air is escaping from somewhere


so today they'll do a CAT scan and more x-rays

to see what's wrong and also get the results from her surgery


big day for my little girl