she text me and said she's down to 80lbs.
!!!
i knew it
why can't they give her enough nutrition?
she said that she's likes her new room and nurses
i'm not quite sure where she is (what kinda set-up)
she doesn't feel good today
i told her to just rest...
Sunday, November 18, 2007
CarePages Update
FROM ACACIA'S MOM...
Acacia moved upstairs to 9D late last night.
The room is like a closet and the nurse wasn't thrilled to see the cot.
Acacia had a good night's sleep.
She still can not eat or talk, so the phone is disconnected in the room,
it is one too distracting, and two really stressful as she can't talk and then she gets sad/upset.
The internet is down again at the hospital but keep the messages flowing as i will print them here at the hotel and bring them into her.
So this is the start of the next chapter!
Acacia moved upstairs to 9D late last night.
The room is like a closet and the nurse wasn't thrilled to see the cot.
Acacia had a good night's sleep.
She still can not eat or talk, so the phone is disconnected in the room,
it is one too distracting, and two really stressful as she can't talk and then she gets sad/upset.
The internet is down again at the hospital but keep the messages flowing as i will print them here at the hotel and bring them into her.
So this is the start of the next chapter!
Saturday, November 17, 2007
thank god for texting!
a lot of people don't like this 'texting thing'
it's a life-line for me and my kid
and i just had a wonderful session
she told me all about
-that they're moving her upstairs
-and how happy she is about getting out of CTICU
-and that she got some 'signed' stuff from
the world champion boston red sox players
-and that she's got a smaller trach tube
-and that they're gunna work on helping her talk
(a matter of time)
she sounded great and she also said that
she misses me soooooooooooooooo much
THANK GOD FOR TEXTING
suddenly, cooperative
now, all of a sudden
this nurse wanted to tell me everything
-i couldn't get her off the phone
wonder what's changed
she said acacia's in her chair resting
she's been busy
went for a ride in the wheelchair
went for a walk
had the trach tube replaced with a smaller one
got her 'transfer orders' (she's moving upstairs!)
the nurse said that her rash goes away when they treat it
and that she hasn't been on the ventilator for 'awhile'
at night she's gets assistance with the bipap (creating pressure in lungs)
and all day long, she breaths with her new lungs
-with an oxygen mask (set at the lowest setting)
she's doing good, and has come a long, long way
we'll see what 'upstairs' brings
this nurse wanted to tell me everything
-i couldn't get her off the phone
wonder what's changed
she said acacia's in her chair resting
she's been busy
went for a ride in the wheelchair
went for a walk
had the trach tube replaced with a smaller one
got her 'transfer orders' (she's moving upstairs!)
the nurse said that her rash goes away when they treat it
and that she hasn't been on the ventilator for 'awhile'
at night she's gets assistance with the bipap (creating pressure in lungs)
and all day long, she breaths with her new lungs
-with an oxygen mask (set at the lowest setting)
she's doing good, and has come a long, long way
we'll see what 'upstairs' brings
Friday, November 16, 2007
'i thought something was fishy'
THIS IS WHAT WE'VE BEEN DEALING WITH
me once or twice a day on the phone
and acacia and her mom 24/7
CarePages Update
from acacia's mom
It is unbelievable if you saw her the last two days, you would not think it was the same patient. Acacia developed a very serious allergic reaction to two medicines not interacting well. It actually started at the beginning of the week, and became progressively worse. Each time she would suddenly complain of being on fire, and her chest would hurt and she would be numb all over. I would ask what did you give her for medicines, I think she is having a reaction to something. Each time the nurses would say oh she can't have a reaction now it would of shown up right away. She has been on the same meds since the beginning. I would argue that in Acacia's case she "develops" allergic reactions over time. They would say that is not possible. And it would be dropped.
Yesterday I walked in to find Acacia in the chair all blotchy red, hysterical without noise, writing she felt like she was on fire. She had been calling the nurse with the call button but no one answered. Of course the nurse complained she was overworked with the two patients.. She also had chest pain, I called for the nurse who in a very condescending tone told Acacia "you're fine you are just upset: Well, I told her my daughter does not cry or complain get a doctor, she came back a little while later and said they have other emergencies,,,,
so the next person who walked by I grabbed by her coat, she was shocked and told me she wasn't "on" yet, I told her I didn't care get help NOW, the charge nurse came in and immediately said you're right it is a reaction to something it is definitely not anxiety. Then the doctors showed up and it took them a few hours to figure it out.
me once or twice a day on the phone
and acacia and her mom 24/7
CarePages Update
from acacia's mom
It is unbelievable if you saw her the last two days, you would not think it was the same patient. Acacia developed a very serious allergic reaction to two medicines not interacting well. It actually started at the beginning of the week, and became progressively worse. Each time she would suddenly complain of being on fire, and her chest would hurt and she would be numb all over. I would ask what did you give her for medicines, I think she is having a reaction to something. Each time the nurses would say oh she can't have a reaction now it would of shown up right away. She has been on the same meds since the beginning. I would argue that in Acacia's case she "develops" allergic reactions over time. They would say that is not possible. And it would be dropped.
Yesterday I walked in to find Acacia in the chair all blotchy red, hysterical without noise, writing she felt like she was on fire. She had been calling the nurse with the call button but no one answered. Of course the nurse complained she was overworked with the two patients.. She also had chest pain, I called for the nurse who in a very condescending tone told Acacia "you're fine you are just upset: Well, I told her my daughter does not cry or complain get a doctor, she came back a little while later and said they have other emergencies,,,,
so the next person who walked by I grabbed by her coat, she was shocked and told me she wasn't "on" yet, I told her I didn't care get help NOW, the charge nurse came in and immediately said you're right it is a reaction to something it is definitely not anxiety. Then the doctors showed up and it took them a few hours to figure it out.
'excellent'
i pulled more teeth this morning
with no novocain
i even raised my voice a little
to pry some news outta her nurse
she loosened-up and told me
that she's having an excellent day
she's doing the bipap machine at night (all night)
and is breathing (with the mask) on her own all day!
she's had yet another walk
and is walking great, no huffing OR puffing
she's sitting up in her chair
and looking great (i already knew that)
sooooo
our prayers are being answered
as a direct result of our hope and trust in jesus christ...
with no novocain
i even raised my voice a little
to pry some news outta her nurse
she loosened-up and told me
that she's having an excellent day
she's doing the bipap machine at night (all night)
and is breathing (with the mask) on her own all day!
she's had yet another walk
and is walking great, no huffing OR puffing
she's sitting up in her chair
and looking great (i already knew that)
sooooo
our prayers are being answered
as a direct result of our hope and trust in jesus christ...
Thursday, November 15, 2007
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