she's out
she got released today
she said it was like getting out of prison
(one of her favorite shows is 'prison break')
they went to the hotel for more christmas
and she spent the day figuring out her new iPhone
she's so happy (aren't we all)
she's been there for so long
and has gone through so much
thank you all for all your love and support
she'll be at the hotel , maybe another month
there are already appointments with various doctors
piling up (they are gonna be keeping a eye on her)
but for now, she's doing good and out!
thank god for this wonderful news
Wednesday, December 26, 2007
Monday, December 24, 2007
merry (happy and joy-filled) christmas

she just called me from her hotel room
she's out!
-not for good, quite yet
but for today (and tomorrow)...
IT'S CHRISTMAS!!
thank you all for what you sent her
-you know who you are
she's right now in her room (in street clothes)
opening presents and activating her new iPhone
-she's thrilled
so aren't we all
and to all
a merry christmas!!!!!
Saturday, December 22, 2007
hurry, wait, get better
she's been so looking forward to...
getting outta there, just in time for christmas
but
Acacia had a setback, her lungs filled up with fluid the other night
and she was couching-up some blood
they treated her with Lasix and didn't have to go back on dialysis again
this is the third time this has happened
they say she's getting stronger and it shouldn't keep happening
so
going 'home for the holidays' (the hotel)
might not happen
they might let her and her mom out for christmas (day pass?)
so they can enjoy the holiday together
please continue to pray for our girl
getting outta there, just in time for christmas
but
Acacia had a setback, her lungs filled up with fluid the other night
and she was couching-up some blood
they treated her with Lasix and didn't have to go back on dialysis again
this is the third time this has happened
they say she's getting stronger and it shouldn't keep happening
so
going 'home for the holidays' (the hotel)
might not happen
they might let her and her mom out for christmas (day pass?)
so they can enjoy the holiday together
please continue to pray for our girl
Tuesday, December 18, 2007
no more machines
what should be (we pray)
the last of the machines
was removed today
she has been 'signed off' dialysis
her kidneys are working well enough
that the doctors feel that she doesn't need dialysis
this is so great
my mother had to endure dialysis 3 times a week
and it's a real tough process
-taking all the blood out of the body
cleaning it and them returning it
-scary
well, no more for our girl!!
please continue to ask god for his protection
and provision for acacia
and please praise and give thanks for
all this wonderful news that she's been given
the next miracle comes friday
when she's scheduled to be released from the hospital
-praise god!
the last of the machines
was removed today
she has been 'signed off' dialysis
her kidneys are working well enough
that the doctors feel that she doesn't need dialysis
this is so great
my mother had to endure dialysis 3 times a week
and it's a real tough process
-taking all the blood out of the body
cleaning it and them returning it
-scary
well, no more for our girl!!
please continue to ask god for his protection
and provision for acacia
and please praise and give thanks for
all this wonderful news that she's been given
the next miracle comes friday
when she's scheduled to be released from the hospital
-praise god!
Monday, December 17, 2007
"it's out!"
she just called me this morning
and yelled, 'it's out'
yes
they have taken the tube out of her throat
-no more trach tube
she's been talking for a while and talking good
but now, no tube
and they think that the hole will close-up soon
she also told me that she expects to 'be released' friday
naturally, she can't wait to get out of the hospital
and back to the hotel
she's so looking forward to that
-to spend christmas with her new pittsburgh friends
and then her birthday too, 'outta the hospital'
she's doing so good
and it's so unbelievable that this long hospitalization is nearly over
-still a long way to go
-still she's come such a long way
what a christmas gift for all of us!
and yelled, 'it's out'
yes
they have taken the tube out of her throat
-no more trach tube
she's been talking for a while and talking good
but now, no tube
and they think that the hole will close-up soon
she also told me that she expects to 'be released' friday
naturally, she can't wait to get out of the hospital
and back to the hotel
she's so looking forward to that
-to spend christmas with her new pittsburgh friends
and then her birthday too, 'outta the hospital'
she's doing so good
and it's so unbelievable that this long hospitalization is nearly over
-still a long way to go
-still she's come such a long way
what a christmas gift for all of us!
Saturday, December 15, 2007
it's a beautiful day
what a great day!
-just got off the phone with acacia
we had a nice, long conversation
she talked about what she's been through
and where she's going
and all the things she's looking forward to doing
can't wait to get a car and get a job and get back to school
and get to her senior year and travel and fly and come back to california
she's getting her trach-tube out of her throat monday
and hopefully be released to the 'hotel' next week
she's so excited about using her iPhone and being away
from all those other machines...
she talked about how she's not used to not being
hooked-up to her flolan pump
-she's been dragging that thing around for years
and now she's free!
she's thinking about writing a book about her experiences
we talked about a new title -"UnHooked"
because now, she'll be free from that pump
what a great conversation we had
-so full of hopes and dreams and future conquests
kinda makes you think about what's important
and how some problems and set-backs in life are just
-plain silly
she's a champion and she's (again)
made my life worthwhile and complete
-just got off the phone with acacia
we had a nice, long conversation
she talked about what she's been through
and where she's going
and all the things she's looking forward to doing
can't wait to get a car and get a job and get back to school
and get to her senior year and travel and fly and come back to california
she's getting her trach-tube out of her throat monday
and hopefully be released to the 'hotel' next week
she's so excited about using her iPhone and being away
from all those other machines...
she talked about how she's not used to not being
hooked-up to her flolan pump
-she's been dragging that thing around for years
and now she's free!
she's thinking about writing a book about her experiences
we talked about a new title -"UnHooked"
because now, she'll be free from that pump
what a great conversation we had
-so full of hopes and dreams and future conquests
kinda makes you think about what's important
and how some problems and set-backs in life are just
-plain silly
she's a champion and she's (again)
made my life worthwhile and complete
Friday, December 14, 2007
anonymous comment
Anonymous has left a new comment on your post "looking good":
And without faith it is impossible to please God,
because anyone who comes to Him must believe that
He exists and that He rewards those who earnest seek Him.
Hebrews 11:6
The hard thing to understand is that faith is
the one area in our lives where growing up means we must grow
to be more like a child, trusting simply in the goodness
and complete knowledge of a Father who has our best interests at heart.
adversity is a bridge to a deeper relationship with god
only genuine faith can bridge the gap
And without faith it is impossible to please God,
because anyone who comes to Him must believe that
He exists and that He rewards those who earnest seek Him.
Hebrews 11:6
The hard thing to understand is that faith is
the one area in our lives where growing up means we must grow
to be more like a child, trusting simply in the goodness
and complete knowledge of a Father who has our best interests at heart.
adversity is a bridge to a deeper relationship with god
only genuine faith can bridge the gap
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