Acacia is trying her hardest to breathe on her own.
She did about 1 1/2 hours on the trach mask yesterday and 3 hours today.
They put another line into her g tube as her stomach can not handle anything
-so now the feeding goes right to her intestines, she still is nauseous and having other issues
-but it seems to be better.
They took her off the 24/7 dialysis and now she is on the three hour one three times a week.
They took the arterial catheter out of her leg last night,
which is another step in the right direction.
Compared to a week ago, things are so much better. Such a long road.
She asked again today on her chalk board about Christmas, and then started to cry.
It is all so overwhelming. I won't answer her as I don't want to disappoint her,
so we will take it a moment at a time.
Posted on November 7th from Acacia's CarePage Updates -Children's Hospital Boston
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