two purple popsicles

tonight when i got there

things were looking up

she had just finished eating two popsicles


and over in the corner was her dialysis machine


it was turned OFF


she's doing good

still so weak but seems that for right now

it's all systems go

good news from bed #3

her nurse told me that her blood pressure is stabilized

and her heart rate is good or at least understandable

so the doctors have decided to take her OFF the 24 hour dialysis

and just go to every other day for 4 hours at a time, great!


another day and another machine gone


she still is so frail and weak

while i was there a therapist came in and moved her

arms and legs around to keep 'em strong and flexible

she responded well, the therapist seemed happy


she's resting today, or trying to

they come in every few minutes to do something to her

-she's in good hands in more ways than we can know


this was posted by Anonymous (you can post too :)


I would have despiared unless I had believed that I would

see the goodness of the Lord in the land of the living

Wait for the Lord, Be strong and let your heart take courage

Yes, wait for the Lord

Hal and Lulu

sick people at the hospital shouldn't be the nurses

yes, it seems that maybe her nurse gave her something

she's got a fever and her white blood count is high

they don't know what it is

but they're treating her with some antibiotics


her blood pressure is still too high and her heart rate

is between 99 and 109. too high


she went to sleep while i was there

and she didn't tell me to leave

but this morning she's too sick to say or do anyhing


her mom came in to take care of her

she's really upset and has had acacia's main doctor in boston

start to get ON these doctors and nurses here in pittsburgh


she's on continuous dialysis and i think that's what's

happening with her blood pressure and heart rate

ya know, dialysis beats the heck outta you


let's just hope that her infection is nothing (or treated)

and that her kidneys heal and start working right again

ok, it's whine time

she had an OK day

they had problems with her blood pressure

and when they gave her that medication, it went to low

so they had to stop taking out so much fluid

and her mom said, when she was sleeping today her heart rate was too high


up and down, up and down, just like the ride


they gave her a special mattress that fills with air

and moves her around, to move the fluids around

she hates it


so, her mom left for a second to give us some alone time

we got along good, talking about stuff we like

it was difficult for her to make me understand what she's saying

we talked about writing on her phone, then computer, then

how about a pen and some paper? duh

the nurse gave us a clipboard and some paper and a pen

and she wrote

'i want to go to sleep'


that ended my visit

waaaaaaaaaahhhhhh

weaning, not whining

when i went in this morning

there was a big orange sign hanging over her bed

WEANING IN PROGRESS

little by little

they are weaning her off of the breathing machine

an hour here and an hour there

she has to learn to breath on her own


this has been tough on her

she sometimes struggles and it's frustrating and it hurts

she continues to complain about chest pains

the nurses and her doctors and the machines and her mother are checking everything

everything seems OK


she seems so weak and out of it

guess that's to be expected

it's just so hard to see her this way

she does smile when her mom reads her her mail


her heart has been so over worked for so long

it's gonna take awhile to start to feel and work normal, i guess


i'm outta the loop

they don't discuss too much with me

mainly because her mom is right there 'on the case'

also acacia has asked me to leave a couple of times now


no whining

roller coaster

people have been telling me about this

that her recovery will, without a doubt be a ride


tonight she's not so good

she's alert, but she looks so pale and frail


she's been complaining about chest pain all afternoon

they give her an EKG that came out OK

she's been off and BACK ON her breathing machine all day


the breathing doctors have been giving her 'trials'

and they said she's done fine

she looked like she was struggling to make her new lungs work


they gave her some pain medication and her mom's with her

soothing her and helping her get some sleep

she's on lots o' drugs, i don't know all the names (i'm drug free)

so she should rest good tonight, then back at it tomorrow


they'll be ups and downs but for what she's been through...

she just lays there and gives the thumbs-up

the doctor said she's been doing that all day

i told him she was a pilot

good day. sunshine.

as i walked in for this morning's visit

all the nurses said she's much 'brighter' today

smarter?

she was a lot brighter

it's a bright and beautiful day here in the pitt

and she's looking good



another day, another machine!!!


they've taken her off her breathing machine!

she's breathing on her own!!

her new lungs are working!!


they are just giving her some oxygen, but she's doing the rest


speaking of rest, she wanted some

she was feeling good enough to tell me to go

i told her that i love her, she mouthed back i love you too dad

without the big tube in her mouth! prasie god!!!