big thanks for the big event

There are so many times, mainly late nights,

when I feel so alone in this battle that I face

-in the war that my daughter is facing.

But at the event last night at Smooth's,

I felt so encouraged and loved that I know this battle is being fought

-with an army full of people who care so deeply about

me, my daughter and just plain ol' people who need a hand.

The heart-felt love and sense of compassion was overwhelming.

The event for my daughter was not a success for the amount of cash that it raised

but for the out pouring of true love that it conveyed.

CarePage Update

Acacia is trying her hardest to breathe on her own.
She did about 1 1/2 hours on the trach mask yesterday and 3 hours today.
They put another line into her g tube as her stomach can not handle anything
-so now the feeding goes right to her intestines, she still is nauseous and having other issues
-but it seems to be better.
They took her off the 24/7 dialysis and now she is on the three hour one three times a week.
They took the arterial catheter out of her leg last night,
which is another step in the right direction.

Compared to a week ago, things are so much better. Such a long road.
She asked again today on her chalk board about Christmas, and then started to cry.
It is all so overwhelming. I won't answer her as I don't want to disappoint her,
so we will take it a moment at a time.

Posted on November 7th from Acacia's CarePage Updates -Children's Hospital Boston