slight improvement

is better than none

they hope to take the breathing tube

out of her mouth and throat

and replace the 'trach' tube

i like that, i hate that tube in her mouth

her numbers are still fine and she's still sedated

'slightly'

she's 'comfortable' and 'holding her own'


the biopsy showed "NO REJECTION" -that's great!

there is still air around her heart

but it's not effecting her heart function

and it 'may' have started to dissipate


overall: 'slight improvement'

in a long long road to recovery

no results / nothing new

she had her CAT scan

there is still no results from

her surgery yesterday and her scan today

she's still heavily sedated and resting

her nurse told me she's doing ok

they are taking a lot of fluids from her

-she's on continuous dialysis -so that's good

and they were able to lower her settings on

her breathing machine -so that's good

and her 'numbers' are good -so that's good

also the air around her heart has not increased

so they 'think' that's good...


a lot of guessing and waiting and this is driving me

nuts!

good news ...and bad

the good news is that they've taken that

big, double-wide vent tube out of her mouth

and replaced it with a smaller one

seems the issue of a 'collaped lung' has passed

she's oxygenating well and her numbers are good


the bad news is that her x-ray this morning revealed

air in the sack around her heart

it's not causing any trouble yet,

but they gotta fix it, air is escaping from somewhere


so today they'll do a CAT scan and more x-rays

to see what's wrong and also get the results from her surgery


big day for my little girl

post op update

she did good

and seems to be improving

i know that as soon as they take off

some water weight, that she does better

the nurse said she's drying out fine

and that's so important for her

back on the full-time dialysis machine,

they've taken off 3 liters since her surgery

and the nurse said her 'numbers' are lookin' good

her heart, blood pressure and all that stuff are ok

just gotta fix those new lungs of hers

-they do work better than the old ones however


they have her sedated and she's resting 'comfortably'

tomorrow, (or the next day) they should know what's going on

infection or rejection or whatever

but for tonight, god love her, she's done more

than any of us could do

she's always been special (not short bus special)

and she's continues to show us more


and her heavenly father shows how much he loves her

another surgery: completed

just got off the phone with her nurse

she's back in her room after

'open chest' lung surgey

'she did great' and she's in with her mom


the nurse said that she's been coming out

of the anaesthesia and that she's not in any

pain or discomfort, they asked and she nodded 'no'

whew!


they are taking the tissue to be evaluated

and they should know a lot more tomorrow

in the meantime, praise the lord...

-yet another major surgery complete and safe


they are gonna re-hook her to her machines

and, god willing she can rest today and tonight

keep praying please, god IS doing HIS work

one step forward and two (or 3) steps back

her nurse just told me she's had a real rough day

she's got a lot of fluid build-up inside so

she's BACK ON the dialysis machine

she's not getting enough oxygen and gases

so she's BACK ON the ventilator

in her mouth and down her throat

they're testing samples, they don't know

if she's got an infection or she's

rejecting her new lungs

she's BACK ON heavy sedation and pain medication

and maybe tomorrow they will do a

'open chest' biopsy

that's another surgery to take a sample of her

lung to see what's going on


WHAT'S GOING ON?????????

'the ride' continues

i'm not getting all the information

her nurse was very hush hush this morning

acacia texted me that she's had bad 'couching spells'

and that one of her lungs has 'collapsed'

the nurse confirmed this and said they're checking

for an infection and that the ventilator is helping

she's in with the doctor and her mom right now


the nurse said that they've had to raise the

oxygen level on her and now she's resting

didn't get a good feeling

-the way the nurse sounded and dodged my questions


i know she's in good hands

-in more ways than one and that

this long long process will be long

but, more prayers please

i'll post you as soon as i know more