side effects

it seems she's been having trouble dealing with

the many, many pills she's on

-and they continue to prescribe way too many

they're all interacting with one another

making her really sick plus her blood pressure is way too high

she's on a very high dose of anti-rejection drugs

because she's already had two bouts of rejection


all this plus back and forth to the hospital

-sometimes three different times a day

and there's nurses and therapists and tutors

and lots of phone calls, whew!


she's going to see a cardiologist tomorrow

to check her heart and blood pressure

and thursday is the day for her bronchoscopy and biopsy

http://www.righthealth.com/Health/bronchoscopic-Diagnostic_Tests-Bronchoscopy/-od-images_4-s


poor thing

so much to handle, but she does... (with class)

-what a great kid and a real fighter

there's some issues

there have been some things to take care of

she's had some stomach problems

and other little problems as well

she's seen a couple of different doctors

she saw her surgeon yesterday

and he was pleased and said that everything looks good

-a knee doctor and he said 'don't worry about it'

they did take out her catheter for the dialysis treatments

so, that's good


she's just plugging along and waiting now for

her 'broch', they'll go in there and check out

her new lungs for any problems or rejection

that's what's next


in the meantime, thank you all so much for your concern

your love and prayers and support

we all really appreciate it very much!

happy new year

christmas has come and gone

birthday has come and gone

she's still in pittsburgh

-gettin' better

today she had some doctors appointments

-they are keeping on eye on her

and tonight's new year's eve

let's all thank god for the blessings of this past year

and the miracles he's worked on acacia

she's been in his care the whole time

and she's come such a long way

-and breathing on her own with her new lungs

pray for happiness and health in the coming year

for us all


08's gonna be great!

birthday

she's out

she's seventeen

happy birthday, baby!

it's a christmas miracle

she's out

she got released today

she said it was like getting out of prison

(one of her favorite shows is 'prison break')

they went to the hotel for more christmas

and she spent the day figuring out her new iPhone

she's so happy (aren't we all)

she's been there for so long

and has gone through so much

thank you all for all your love and support


she'll be at the hotel , maybe another month

there are already appointments with various doctors

piling up (they are gonna be keeping a eye on her)


but for now, she's doing good and out!

thank god for this wonderful news

merry (happy and joy-filled) christmas

she just called me from her hotel room

she's out!

-not for good, quite yet

but for today (and tomorrow)...

IT'S CHRISTMAS!!

thank you all for what you sent her

-you know who you are

she's right now in her room (in street clothes)

opening presents and activating her new iPhone

-she's thrilled

so aren't we all

and to all

a merry christmas!!!!!

hurry, wait, get better

she's been so looking forward to...

getting outta there, just in time for christmas

but

Acacia had a setback, her lungs filled up with fluid the other night

and she was couching-up some blood

they treated her with Lasix and didn't have to go back on dialysis again

this is the third time this has happened

they say she's getting stronger and it shouldn't keep happening

so

going 'home for the holidays' (the hotel)

might not happen

they might let her and her mom out for christmas (day pass?)

so they can enjoy the holiday together


please continue to pray for our girl