rough time

she's anxious and her blood pressure is up

she's sick to her stomach and weak

she's not resting and uncomfortable

the nurse couldn't tell me too much more

because she had to go take care of her

she's having a very rough time of it

and they still don't know what exactly is happening


please keep her in your prayers

ask god to go a little easier on her

'headed in the right direction'

that's how her nurse described her this morning

off sedation, gonna have her sit up in her chair

lowered her oxygen machine to '30'

he did say however that now there's some problem

with her digestive tract, but he wasn't concerned

-'we'll give her something to take care of that'

he said she's headed in the right direction


editor's note:

this is my 50th posting and after this much contact with these various nurses
i think i've come to the conclusion that you really never know what's happening

they are not gonna alarm me or admit that they've done anything wrong
or that their patient is in any pain or distress or danger

but me not being there and all i have to report is what they report to me

-that's how we get back to the question of 'how do we cope?'

we cope with hope

these things are obviously out of our hands
so we have to rely on somebody else to handle things
she's in good hands
and me, for one, i have hope

slight improvement

is better than none

they hope to take the breathing tube

out of her mouth and throat

and replace the 'trach' tube

i like that, i hate that tube in her mouth

her numbers are still fine and she's still sedated

'slightly'

she's 'comfortable' and 'holding her own'


the biopsy showed "NO REJECTION" -that's great!

there is still air around her heart

but it's not effecting her heart function

and it 'may' have started to dissipate


overall: 'slight improvement'

in a long long road to recovery

no results / nothing new

she had her CAT scan

there is still no results from

her surgery yesterday and her scan today

she's still heavily sedated and resting

her nurse told me she's doing ok

they are taking a lot of fluids from her

-she's on continuous dialysis -so that's good

and they were able to lower her settings on

her breathing machine -so that's good

and her 'numbers' are good -so that's good

also the air around her heart has not increased

so they 'think' that's good...


a lot of guessing and waiting and this is driving me

nuts!

good news ...and bad

the good news is that they've taken that

big, double-wide vent tube out of her mouth

and replaced it with a smaller one

seems the issue of a 'collaped lung' has passed

she's oxygenating well and her numbers are good


the bad news is that her x-ray this morning revealed

air in the sack around her heart

it's not causing any trouble yet,

but they gotta fix it, air is escaping from somewhere


so today they'll do a CAT scan and more x-rays

to see what's wrong and also get the results from her surgery


big day for my little girl

post op update

she did good

and seems to be improving

i know that as soon as they take off

some water weight, that she does better

the nurse said she's drying out fine

and that's so important for her

back on the full-time dialysis machine,

they've taken off 3 liters since her surgery

and the nurse said her 'numbers' are lookin' good

her heart, blood pressure and all that stuff are ok

just gotta fix those new lungs of hers

-they do work better than the old ones however


they have her sedated and she's resting 'comfortably'

tomorrow, (or the next day) they should know what's going on

infection or rejection or whatever

but for tonight, god love her, she's done more

than any of us could do

she's always been special (not short bus special)

and she's continues to show us more


and her heavenly father shows how much he loves her

another surgery: completed

just got off the phone with her nurse

she's back in her room after

'open chest' lung surgey

'she did great' and she's in with her mom


the nurse said that she's been coming out

of the anaesthesia and that she's not in any

pain or discomfort, they asked and she nodded 'no'

whew!


they are taking the tissue to be evaluated

and they should know a lot more tomorrow

in the meantime, praise the lord...

-yet another major surgery complete and safe


they are gonna re-hook her to her machines

and, god willing she can rest today and tonight

keep praying please, god IS doing HIS work