all night long

all night

yes

she was off the ventilator and breathing on her own

-all through the night!

the nurse is very encouraged

she said she was on the computer

but i can't get her to email me

kids these days, teenagers

texting and im-ing and emailing her friends

(not dad)

i'm so happy she's able to do it and that the hospital

has a good wireless going for her apple

so she can do this...

that's all for today

next, i'm gonna talk about what the last six weeks have been like...

CarePages Update

...FROM HER MOM

Another great day! Acacia walked down the hallway!
She was able to walk with the Respiratory Therapist walking with the oxygen,
Paul the nurse walked backwards holding onto Acacia and she
"pushed" him all the way down the hallway!
The doctors were all in the hallway everyone was cheering her on!

The doctors said they will never figure out what caused Acacia to crash,
and they really don't know what to attribute her turn around to,
but they are thrilled as am I. I don't care as long as it continues.

The plan now is to put her on a B-Pap machine to help her breathe tonight
with the trach mask, if she can do that for a few days and can continue to progress,
she will be able to go upstairs sometime next week!

Then in the next few weeks if all goes well they will attach a speaking valve to the trach,
and eventually try and downsize the trach so she can begin to eat.

Still a long road, but at least there has been sunshine these past two days.

another walking day

the nurse said she's 'good' today

she's on her 'trach mask'

-breathing on her own, with her new lungs

she's gonna take another walk today

and the nurse is happy with her 'progress'

me too



thank christ!!

"doin' great"

just got this text from her

'on the chair

doin' the mask

doin' great'


well what do you think of that!

good morning!

her nurse said that it's a good morning

she's watchin' a movie with her mom

and feelin' good

-when they take fluids off, that really helps her

all the numbers are good

and she said she's smiling a lot

(that must be making the whole hospital brighter)

-o0h that smile...


there's a big auction for her tomorrow in colorado springs

-during the steelers game

and there's love and prayers coming in from new zealand

things are happening all over for my brave little girl

she's still fighting

breathing on her own, with no help from the ventilator

that's work

and she's workin' it

on her own, all day!

her nurse told me she's been

on the 'trach mask' all day

from 8am to 5pm

-breathing on her own -with her new lungs

all day

this is good and lots of work

so, at the same time they gave her dialysis

and sucked out a liter of fluid from her blood

that combo is a full days work

she said they've just settled her down for the evening

and hopefully (as we always are) she'll get some rest


what a hard working fighter

she's trying so hard

and working so hard

and now god's taking it a little easier on her


for her, the battle continues!

the fight is on!


for the rest of us the fight is on -our knees

(keep saying your prayers, please!)

big thanks for the big event

There are so many times, mainly late nights,

when I feel so alone in this battle that I face

-in the war that my daughter is facing.

But at the event last night at Smooth's,

I felt so encouraged and loved that I know this battle is being fought

-with an army full of people who care so deeply about

me, my daughter and just plain ol' people who need a hand.

The heart-felt love and sense of compassion was overwhelming.

The event for my daughter was not a success for the amount of cash that it raised

but for the out pouring of true love that it conveyed.