not so super sunday

she wore her pats jersy all day

probably, (but hopefully not) stayed up late

-til after 11 her time to see her patriots

not quite make it a perfect season


i do know she stayed in the room all day

and watched the game and

took some photos

< < < < showing what a beautiful daughter

her dad has...

great saturday

got her hair cut and colored

shopped

gonna teach pittsburgh people how to make

real italian food

and just waiting around

to see the patriots win the super bowl

some good news

she just got back from the renal doctor

the doctor and the test say...

that her kidneys aren't s bad as they thought

she reported that everything went well

and her kidneys are better and that

they cut her pill for that problem in half


now she's down to 29 and a 1/2 pills everyday!

uuuuuu-up and downhill

she had a great weekend

shopping and lunching with friends

she had a doctor's appointment this morning

they said her lung function was pretty good

and she's getting stronger and lungs are more powerful

then

the hospital called

with some results of some blood work

-her kidneys are going downhill

they wanted to admit her back in the hospital

but they are gonna let her try some stuff on her own

until wednesday, then re-evaluate


god love her

this kidney thing has been trouble all along

please pray that they kick-in gear

and start to properly function

-this kid needs (yet another) break

this sez a lot

today she went shopping

good run

she's had a couple of good days

-in a row

it's been good

she's eating good and happy about it

keeping most everything down

and doing some livin'

-doin' stuff, getting tutored, stuff


today see saw her surgeon

he took her off some pills

and added some more pills

-that's her deal right now

lots of meds, but he's happy with how she's doin'

and she's happy too

-looking forward to to getting a car

-doin' lots of research on just the right one

your first car ...ahh there's nothing like that feeling

i'm so happy she gets to finally feel it

magic tech

isn't life grand?

both today and saturday we talked together

on the computer

live

with moving pictures and sound, full screen

it's so cool and such a blessing

just like we're sittin' there together

-forty five minutes on saturday

it's just so wonderful

she looks so good and sounds so sweet

she's feeling much better

-being tutored and having lunches

and not a doctor or nurse in sight

(she sees her surgeon wednesday)

so, thank god for the technology that brings

me and me kid together

it's just like magic!